S is for Special – Happy World Down’s Syndrome Day x


It’s World Down’s Syndrome Day. 

It’s a day to celebrate the extra chromosome that makes some people just a little bit more special.
One of the first images I saw on Instagranny today was of my good friend Lee Gooch’s handsome little superhero, Noah.

This image has an empty alt attribute; its file name is screenshot_20210321-131501_instagram.jpg

And oh! How it melted my heart.

What an angelic, gorgeous and perfect little face.  There is mischief in those eyes and he has his Daddy wrapped around his little finger by the looks of this. (Image shared with permission as always)

This image, like all of the beautiful images on my Timelines today, melts my heart, not only because of the joy it shows, but also because of the memories it provokes in me.

Lee and his family are blessed.

I know this, because my family too were blessed.

Actually, we still are.

A child with Downs Syndrome isn’t just their extra chromosome.

A child with Downs, is special.
Special in every sense of the word.
My own Aunty Carmel was special.
She was beautiful, mischievous and intelligent. She held more love in the tip of her finger than ANYONE I have ever known. She was witty, bold and an absolute rascal, loving nothing more than to get the craic going with whoever was visiting.

She loved to dress up, adored The Rose of Tralee and loved to dance.  Every single person who walked through the door of my Grandparents’ home, fell head over heels in love with her. She was the most head-strong, determined and fearless Ladybelle I’ve ever met.  She kept our family on our toes.


And she taught me many lessons.

The main one being that we are all different and that different is good.
I remember being in the Shopping Centre with her and my other Aunty when I was about 5.

Other kids were staring at Carmel. It was the first time I realised that she was different because I suddenly became aware of other people’s reactions to her.

Her reaction to one teenage boy who stopped to look at her? She stuck out her tongue at him, laughed her hearty laugh and waved at him mischievously as we pushed her past.
There and then, I was proud of her. Even at that young age, she taught me that you must NEVER let anyone bring you down, that you must be YOU, and that there IS no other You to be.
She was perfect.

She was the strongest woman I ever had the pleasure of knowing.  Carmel had no tolerance for nonsense, seeing the world without political correctness or prejudice. She also had no filter! (I take after her like that!)  She simply saw people.  She recognized and delighted in kindness. She had no time for people who were not kind.

She was more brave and more caring and more wonderful than I could ever put into words and I miss her every day.

She was indeed my Special Aunty, but for so many more reasons than her Downs Syndrome.

Special doesn’t even start to describe her or the love that she gave or more importantly, the love that she demanded.

Love.

Pure and true…

Like the love on wee Noah’s face in that photograph and every day.
A family who have been blessed with an extra chromosome, know a love that is beyond words.
So there.

We miss Carmel every day and she lives on in our hearts and in our memories. Knowing and loving her is responsible for so much of who I am today. 

And I send my love and respect to every single family who are fighting every day for the rights of Downs Syndrome children, and who are helping to make people realise that the “S” in DS should not stand for “Syndrome”…

It stands for “Strong”.

It stands for “Smile”

…and it stands for Special.

#worlddownsyndromeday #smile #love #special

(Lee has given me permission to post this pic. Thanks Lovely. And kisses to Noah and his beautiful Mummy and big brother too.)

Are YOU rocking the socks today? You can support Down’s Syndrome Ireland by posting with #LotsofSocks4DSI

My girls and I rocking our socks today for World Down’s Syndrome Day

FAIL…First Attempt In Learning

Failing to Fail…

Why are we so determined to make sure our little darlings never know what it’s like to fail?

Why do we expect everyone to be a high flying “success” at everything?

When did failing at something become so terrible?

I grew up failing. I failed plenty. I failed often.

I’m still failing.And yet, each and every one of those failings was, and is, a learning.

Sometimes, no matter how many times I try and try and try at something, I fail.

Maybe I’m not meant to do it.
Maybe I’m not good enough at it.
Maybe, it’s not within my skill-set.
Maybe, someone else is better than me…

If it’s not happening, I have two choices; I can keep going until I (maybe) do succeed.

Or I can be proud that I tried but move on to another project, accepting that it’s just not going to happen.

But either way, I’ve learned something.

I’ve either learned the right or successful way to do something, or I’ve learned something about ME; about my abilities and my limitations.

Because, it’s OK to have limitations.And shock horror, it’s OK to know what YOUR Limitations are.

It’s actually quite liberating.

If children don’t run, they won’t fall… so how will they learn NOT to?

There is a massive problem in our society and it’s not just with our children.

There is and has been for many years, a mistaken perception that we should teach our children that they “can do anything”; that they “can be anything”; that they can not lose or fail at anything.

That failure is NOT an option.Well actually it is.

And I’d go so far as to say that failure is necessary.

The fear of failure is everywhere.

None of us want our children to experience rejection or failure.

It’s evident at the school sports days, where we make them “race” and “compete” but then give them ALL a certificate or medal.

We see it in dance classes or drama groups, where they audition but ALL get onstage anyway.

We see it at football training, or where the only options are “win” or “a tie”, so that no one has to lose.

Of course, equality and inclusion are inherently important in schools and clubs. And most of these societies and organisations have individualized and tailored policies and programes in place to include everyone.

And so they should.

Inclusion is not what I am talking about here.🥰

But when in general, we are not rewarding the “winners” for fear of upsetting the person in 2nd place, or indeed 24th place, what we are creating is a generation who feel entitled.

We need to stop telling our kids that they can be “anything they want to be”.

We should be encouraging our children to try and try.

We should be telling them they can be what they want to be… IF they have that ability and are willing to work for it.

What is wrong with encouraging them to learn what their strengths and passions are?

What is wrong with encouraging them to try and to work to earn and to deserve the end goal, may that be a degree in medicine or a place on the football team?

What is wrong with our children knowing what they are good at and recognising what they are not so good at?

How are they supposed to work towards improving and learning if they simply think they are entitled to an ‘A’ in an exam, or to the place on the team, or to a certain job because they’ve always been told they can be anything or do anything they want to do?

We do not all have the same skills.

We do not all have the same strengths.

I can teach Shakespeare to a brick, but I couldn’t be a math teacher for all the tea in China, no matter HOW much I worked for it.

And I wouldn’t be able to be a Doctor or surgeon, because I am way too emotional for such a job (and I’m probably, actually, certainly not that academically able!)

Does that mean I am a failure?

Eh no.

Every Irish dancing feis I didn’t win, was a lesson. It spurned me on. Every time I saw that a certain ‘Leah’ or ‘Clare’ was there, I knew that I most likely hadn’t a chance of anything higher than 3rd place.

Did that mean I couldn’t dance?NO. I could dance. Still can. 😂

It just meant that those girls were better than me.

They trained harder. They had more talent. They deserved every medal and cup they won. They inspired me to push harder.Sometimes I won, sometimes I didn’t.

It’s called life.

When I tried gymnastics, the day that I gave myself a black eye with my own knee was the day that I decided I was done.

Funnily enough Mum agreed.

Did I fail? No. I was just shite at gymnastics!

When I got average results in my Junior and Leaving Cert, did I feel like a failure?

No. I got what I deserved and I got out what I put in. I had done my best. And as long as I did my best, that was enough for my parents and it was enough for me.

However, when I have won, or achieved or succeeded, it was celebrated.

Because each time, I bust myself and tried and grafted and worked and any other synonym you can imagine.

And if I do succeed, I am proud of it, because the achievement is mine and I have probably failed ten times before managing it.

If you burn the omelette and don’t try to make it again, how do you eat?Every failed friendship I have, (and there are many), while heartbreaking to deal with, have all been for the best.

Every failed romance (yup many of those too😂!) teaches us something else important about ourselves and the person who is not right for us.

Every failed job or project or application or interview teaches us something.

For me, every time I auditioned, and was rejected, for a part in a show, broke my heart a little.

Of course it did (and does). Let’s be honest, if I didn’t want the part, why would I go for it?

But rather than stomp my foot and think myself too good to return, I pulled up my big girl knickers and still joined the group; may it be to a smaller role or into the chorus.

Because I love it.
I don’t have to be the leading lady to have fun.

And our children need to understand that they don’t have to always win to be winners.

That they don’t always have to score the goals to be important to the team.
That even though they are doing their best, sometimes the person beside them is just a little bit better.

And sometimes, THEY will be that person and someone else will lose to them.

When we started to walk, we all fell…And then we learned how NOT to fall.

And eventually we walked, all by ourselves. (And sometimes, we still fall!) If we keep carrying our kids and our young people over every obstacle, how can we expect them to learn how NOT to fall?

Direct them, encourage them, support them.

But let them feel disappointment sometimes. Let them learn to accept the success of others.

And when they DO succeed, celebrate with them.We have to sometimes fail to really appreciate succeeding. We’re not entitled to anything.

We have to work and try and earn things.

Life will not simply give you things because you think you deserve them.

You get out what you put in.

And while we don’t want our kids to repeat our mistakes, we have to let them make their own, so that they walk by themselves.

Who knows? They might even fly…

Mammy

I am S is for Special – Happy World Down’s Syndrome Day

It’s World Downs Syndrome Day. ❤❤

It’s a day to celebrate the extra chromosome that makes some people just a little bit more special.
One of the first images I saw on Facebook today was of my good friend Lee Gooch’s handsome little superhero, Noah.

This image has an empty alt attribute; its file name is screenshot_20210321-131501_instagram.jpg

And oh! How it melted my heart.

What an angelic, gorgeous and perfect little face.  There is mischief in those eyes and he has his Daddy wrapped around his little finger by the looks of this. (Image shared with permission as always)

This image, like all of the beautiful images on my Timelines today, melts my heart, not only because of the joy it shows, but also because of the memories it provokes in me.

Lee and his family are blessed.

I know this, because my family too were blessed.

Actually, we still are.

A child with Downs Syndrome isn’t just their extra chromosome.

A child with Downs, is special.
Special in every sense of the word.
My own Aunty Carmel was special.
She was beautiful, mischievous and intelligent. She held more love in the tip of her finger than ANYONE I have ever known. She was witty, bold and an absolute rascal, loving nothing more than to get the craic going with whoever was visiting.

She loved to dress up, adored The Rose of Tralee and loved to dance.  Every single person who walked through the door of my Grandparents’ home, fell head over heels in love with her. She was the most head-strong, determined and fearless Ladybelle I’ve ever met.  She kept our family on our toes.


And she taught me many lessons.

The main one being that we are all different and that different is good.
I remember being in the Shopping Centre with her and my other Aunty when I was about 5.

Other kids were staring at Carmel. It was the first time I realised that she was different because I suddenly became aware of other people’s reactions to her.

Her reaction to one teenage boy who stopped to look at her? She stuck out her tongue at him, laughed her hearty laugh and waved at him mischievously as we pushed her past.😂😂
There and then, I was proud of her. Even at that young age, she taught me that you must NEVER let anyone bring you down, that you must be YOU, and that there IS no other You to be.
She was perfect.

She was the strongest woman I ever had the pleasure of knowing.  Carmel had no tolerance for nonsense, seeing the world without political correctness or prejudice. She also had no filter! (I take after her like that!)  She simply saw people.  She recognized and delighted in kindness. She had no time for people who were not kind.

She was more brave and more caring and more wonderful than I could ever put into words and I miss her every day.

She was indeed my Special Aunty, but for so many more reasons than her Downs Syndrome.

Special doesn’t even start to describe her or the love that she gave or more importantly, the love that she demanded.

Love.

Pure and true…

Like the love on wee Noah’s face in that photograph and every day.
A family who have been blessed with an extra chromosome, know a love that is beyond words.
So there.

We miss Carmel every day and she lives on in our hearts and in our memories. Knowing and loving her is responsible for so much of who I am today.  I may have inherited her intolerance to nonsense… 😉

And I send my love and respect to every single family who are fighting every day for the rights of Downs Syndrome children, and who are helping to make people realise that the “S” in DS should not stand for “Syndrome”…

It stands for “Strong”.

It stands for “Smile”

…and it stands for Special.

#worlddownsyndromeday #smile #love #special

(Lee has given me permission to post this pic. Thanks Lovely. And kisses to Noah and his beautiful Mummy and big brother too.)

Are YOU rocking the socks today? You can support Down’s Syndrome Ireland by posting with #LotsofSocks4DSI

My girls and I rocking our socks today for World Down’s Syndrome Day