S is for Special – Happy World Down’s Syndrome Day x


It’s World Down’s Syndrome Day. 

It’s a day to celebrate the extra chromosome that makes some people just a little bit more special.
One of the first images I saw on Instagranny today was of my good friend Lee Gooch’s handsome little superhero, Noah.

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And oh! How it melted my heart.

What an angelic, gorgeous and perfect little face.  There is mischief in those eyes and he has his Daddy wrapped around his little finger by the looks of this. (Image shared with permission as always)

This image, like all of the beautiful images on my Timelines today, melts my heart, not only because of the joy it shows, but also because of the memories it provokes in me.

Lee and his family are blessed.

I know this, because my family too were blessed.

Actually, we still are.

A child with Downs Syndrome isn’t just their extra chromosome.

A child with Downs, is special.
Special in every sense of the word.
My own Aunty Carmel was special.
She was beautiful, mischievous and intelligent. She held more love in the tip of her finger than ANYONE I have ever known. She was witty, bold and an absolute rascal, loving nothing more than to get the craic going with whoever was visiting.

She loved to dress up, adored The Rose of Tralee and loved to dance.  Every single person who walked through the door of my Grandparents’ home, fell head over heels in love with her. She was the most head-strong, determined and fearless Ladybelle I’ve ever met.  She kept our family on our toes.


And she taught me many lessons.

The main one being that we are all different and that different is good.
I remember being in the Shopping Centre with her and my other Aunty when I was about 5.

Other kids were staring at Carmel. It was the first time I realised that she was different because I suddenly became aware of other people’s reactions to her.

Her reaction to one teenage boy who stopped to look at her? She stuck out her tongue at him, laughed her hearty laugh and waved at him mischievously as we pushed her past.
There and then, I was proud of her. Even at that young age, she taught me that you must NEVER let anyone bring you down, that you must be YOU, and that there IS no other You to be.
She was perfect.

She was the strongest woman I ever had the pleasure of knowing.  Carmel had no tolerance for nonsense, seeing the world without political correctness or prejudice. She also had no filter! (I take after her like that!)  She simply saw people.  She recognized and delighted in kindness. She had no time for people who were not kind.

She was more brave and more caring and more wonderful than I could ever put into words and I miss her every day.

She was indeed my Special Aunty, but for so many more reasons than her Downs Syndrome.

Special doesn’t even start to describe her or the love that she gave or more importantly, the love that she demanded.

Love.

Pure and true…

Like the love on wee Noah’s face in that photograph and every day.
A family who have been blessed with an extra chromosome, know a love that is beyond words.
So there.

We miss Carmel every day and she lives on in our hearts and in our memories. Knowing and loving her is responsible for so much of who I am today. 

And I send my love and respect to every single family who are fighting every day for the rights of Downs Syndrome children, and who are helping to make people realise that the “S” in DS should not stand for “Syndrome”…

It stands for “Strong”.

It stands for “Smile”

…and it stands for Special.

#worlddownsyndromeday #smile #love #special

(Lee has given me permission to post this pic. Thanks Lovely. And kisses to Noah and his beautiful Mummy and big brother too.)

Are YOU rocking the socks today? You can support Down’s Syndrome Ireland by posting with #LotsofSocks4DSI

My girls and I rocking our socks today for World Down’s Syndrome Day

The “Great” Outdoors – It Really Is.

The Great Outdoors

It’s not just “great” because it’s huge and gargantuous, it’s “great” in so many more ways than that.

Mountains, rivers, lakes and valleys… Our imagination takes us straight to the visuals of national parks and sweeping mountain ranges when we hear the words “The Great Outdoors”.

But the phrase has taken on new meaning for us in the past 10 months. Not the “outdoors” bit – the “Great” bit.

I’ve always been a fan of the outdoors. When you grow up on a farm in Donegal, you don’t really have any other option. But even as an adult, with my farm duties minimised to a few days a year helping the Daddy out, the outdoors is somewhere we try to spend a lot of time.

Family fundays are (were) always outdoors

We’re one of those families. Even long before we had heard the word “lockdown”, Sundays were our Fun-days and usually involved a beach or a forest or a hike up something. And on the odd day where we found ourselves Kiddy free, we liked to climb the odd mountain. Yes, for fun.

Muckish was the last mountain we climbed in June last year, once restrictions allowed us to drive to it!

So now we’re obviously missing being able to adventure throughout our beautiful county, but ironically, never before have I enjoyed the outdoors so much. Nor have I ever needed it so much. It’s no longer just for Sundays. It’s become a daily requirement in my life. And in Himself’s life and certainly in the girls’ lives.

We can’t go far. The garden is plenty big for the girls to run free and living in the sticks (as they say) means that we can walk or run on a few different roads within our 5k.

Last week, I turned left instead of right for the first time and ended up running on a road I probably haven’t been on in 25 years. I never need to drive it. It was like travelling to Narnia, bringing me past a farm on which I spent many a day playing as a child (Dad kept cattle there) and past homes of people I haven’t seen since National school. How quickly we get set in our ways eh? I’ll be running that road more often. It made me smile.

A different road within my 5k brought back memories

I’ve never been so glad to be able to get outdoors. Even on the days where I can’t get out for a run, if it’s too slippy, or I’m too busy, I make a point of going outdoors. Even if it’s only to walk around the house a few times, or to stand in the garden. Coat on , cuppa in hand and out I go. Because in our current situation, the outdoors is indeed great. Even if you’re only going as far as your back step.

It’s “great” because it’s fresh. Deep breaths of cold air, your face stinging from the temperature change as you step outside, your exhalations evaporating in clouds at your face… it’s rejuvenating.

It’s calming. It’s soothing. It’s relaxing and refreshing. Sometimes, it’s the only place we can escape the constant noise and chaos of our precious children. I can tolerate the noise of my two a WHOLE lot more when we’re outside! (Not sure I can say the same for the neighbours. They sometimes sound like there are 38 of them.)

But seriously, there is something magical about fresh air and what it can do. No it can’t solve our problems or change things, but it can allow us to see them differently. And sometimes, getting outdoors gives us the opportunity to process them that we can not get when surrounded by noise and washing machines and bleeping devices and work piles on the kitchen tables and all the “things” that need done, yesterday.

And so while we’re stuck within our respective 5kms and for most of us, Errigal and Muckish are only visible in the distance or on our phones, we can still get outdoors and let it help us feel better.

We might not feel “great”, but one thing is certain, even a 5 minute breather in the outdoors, will leave you feeling a whole lot better than if you DON’T set foot outside.

And that is all it takes. Open door. Step out. Hello Outdoors. It’s great!

So yes. I can’t wait to explore again; to climb mountains and go on hikes and run a different road. But if nothing else, I’ve learned that they don’t call it the “Great outdoors” just because it’s big and vast.

It’s “great”, whether you’re standing at the foot of a mountain, or walking around your garden, or leaning on your car in your street, or hugging a cuppa on your doorstep.

Step outdoors, just for a few minutes a day. Trust me. It’s great.

A Mum Was Born Too

“A Mum Was Born Too”

Oh! Congratulations, you’ve become a mum,
However you got here, come join in the fun.
It’s really the most natural thing in the world
And women have done it forever you know…”

“So why then, please tell me, for many of us,
Do we struggle and worry and panic and fuss?
How come it all comes so easy to YOU?
And how does SHE always know just what to do?

Why do I feel like a haven’t a notion
No matter how long I’ve been swimming this ocean?
Why does it never seem so obvious
If what I am doing is the right thing for us?

Why, even though I’ve been Mumming for years,
Can zipping a coat up reduce me to tears?
Why do I spend my whole day so uptight
Convinced that nothing I do could be right?

Why does it feel, that for all of my thinking
That I’m possibly, certainly, definitely sinking?
How can ‘the most natural thing in the world’
Continuously spin me and throw me in whirls?”

Well, stop and I’ll tell you, you beautiful lady
We all have these days with our beloved babies.
And no matter what age they are; wee tots to teens,
They test us and try us all the days in between,

And as for you asking why you find it tough?
You’re not on your own, we all have it rough.
Remember that day that your child came to you?
Well remember that day, that a Mum was born too.

The first little cry that announced their arrival,
Set YOU on a path to ensure their survival,
You instantly put yourself second and third
And started to navigate through this new world.

You nurtured and cared and you directed their way
Through the phases and stages and good and bad days,
But while you are focusing on helping them through,
Did you stop to consider that Mums are new too?

We’re all learning daily. And we all make mistakes.
We all doubt ourselves and we all need our breaks.
We need to go easy and give ourselves credit.
We’re all writing books we have no chance to edit.

So don’t look at others and start to feel bad.
And don’t beat yourself up if a day turns out bad.
Give them a hug and take a deep breath,
And give yourself credit for doing your best.

There’s no graduation. There’s no interview.
There’s suddenly more love than you ever knew.
And nothing prepares you for what is to come,
Each day that our kids grow and learn, so does Mum.

Maria Rushe
2020

Might We Eventually Miss Some of this Loathed Lockdown?

Lockdown.

We’re all so looking forward to the lockdown being over and to returning to “normal”…but I’ve been wondering how much of this we will eventually miss.

Now, don’t get me wrong. There is a LOT about this current situation that deserves our frustration and hatred.

The sudden crash of everything, the sudden and immediate changes that none of us were prepared for, the emotional rollercoasters that we’ve been on since March 12th.

We’ve all had our worlds turned upside down. And for those of us who are parents, alongside trying to deal with our own grief and fear, we’ve had the added challenge of trying to provide security and stability to our kids.

And trying to keep one’s shit together so that our kids had to deal with minimal upheaval has been hard.

There is much to despise about Lockdown; not seeing family, not hugging, being limited to our homes and minimal journeys, the gauntlet that is the foodshop, the stresses of trying to save businesses, the “joys” of homeschooling our kids… all of these things have had us reeling.  I know they’ve left me reeling anyway.

And for many of us, we’ve been trying to keep working while parenting.  It’s been, erm, interesting to say the least.

And of course, MANY MANY MANY of you have continued going out to work on the frontline and in essential services, putting yourselves at daily risk to try to keep some normality going. (You are all heroes.)

We’re all at the point where the novelty has well and truly worn off. 

We’re all at the point where we’re done with this situation, and yet we are a long way from returning to the “normality” that we all crave so much.

We are all different, with different realities and different “normals” and we all have our own struggles and triumphs right now.  As with all things parenting, we can not compare our homes to other, nor should we.  Some of us are LOVING this. Some of us are hiding at least once a day in the utility room or bathroom.

We might be all in the same storm, but each and everyone of us has our own boat, and those boats differ greatly.  We shouldn’t judge each other’s boats.

BUT. 

Dare I say, there have been positives that maybe we have yet to appreciate. 

For me, the biggest change has been slowing down.

I’ve gone from having a schedule which literally had something every hour of every day, for myself and the girls, to slowly realising that much of my running and “Busyness” was unnecessary.

I’ve realised that being Busy all the time is not conducive to being happy.

I’m enjoying spending time with my girls… and yet it’s still PERFECTLY acceptable to admit that some days I just want to scream and hide.  You can be a good parent while admitting to needing a break.  It’s not a sign of weakness, but that’s a WHOLE other article.

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I love that the girls are getting this HUGE chunk of time with Myself and Daddy in the house with them.

I love that we’re getting to spend this chunk of their childhoods with them, with no interruptions or “other” stuff to do. We’ll never get this back.

I’m loving spending time with Himself.  We’ve been together a LONG time, and yet I don’t think we’ve EVER spent more than a week or two in each other’s constant company. Certainly not at home. That joy is usually only achieved when we’re on or family holiday.  (And yes, it has been an adjustment and a challenge for both of us!)

I’m struggling with plenty, but as we step into phase one of our reawakening, I find myself taking note. 

Because some day soon, I’ll crave the nothingness, if only just for a day.

Some day soon, I’ll wish I was back at home watching the girls playing with the dog.

Some day soon, I’ll wish I had nothing to do or nowhere to go.

Someday soon, I’ll find myself missing Himself, because we’ll be back to our usual Sunday night joke of “See you Friday Baby!”…

Now, for fear of sounding romantic and idealistic, I’ll NEVER miss the zoom meetings, or teaching from home, or constant worry that has coated every day of my life since March 18th.

I’ll NEVER miss trying to work and train and teach and parent and feed and comfort and exist all under one roof, in a constant whirlwind of our new normal.

I long to get back to my jobjob, to get my girls back to the joy of their school and seeing their friends, to get back to having a hot cuppa in the staffroom with a friend, or sneaking a coffee date with someone in before doing the school run, to get the door of our gym open again, to wander around Dunnes at my leisure without fear or anxiety.

I long to hug my family, to see my brother and his family who are so near but yet so far right now, to visit my friends, to get back to rehearsals, to go for dinner, to go to the theatre, or the cinema, or just for a quick bite to eat.

I long to book a flight to see a sibling, or book a hotel for a night away, to visit a park, to drive to Glenveagh, to climb Errigal, to walk on a beach, to see outside out my own 5k.

And yet, I’ve never been so grateful for my own 5K…

This weekend, I took the girls down one of our fields on our family farm, and we had a picnic in the grass.  It was where my siblings and I played daily as kids.  It’s right on our doorstep and yet I do wonder if I EVER would have “had time” to take them down the field for a picnic in normal life.

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Last week, we spent two hours on the shore near our house, again in a spot that I haven’t visited since I was a child.  We’ve driven past it to go ANYWHERE for years.  I don’t think we’d have ever visited under normal circumstances.

Himself has finally had time to walk the route that I’ve been walking my whole life.  He never understood why I loved it until he learned to love it himself.  He never would have walked these roads under normal circumstances.  He never would have had time.

And so while I am very aware that lockdown is going nowhere for the foreseeable, with the glimmer of hope that is upon us tonight in the final night before Phase 1, we can begin to look forward.

But in looking forward, I think that many of us will begin to look back at this time too.

We’ll take certain parts of this experience with us as we walk towards our individual realities, and for me at least, I’ll be bringing a few new priorities into mine.

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And while I won’t miss this one little bit, and I’ll embrace as much of my old life as I can, I’ll also look back and be glad of the time that I got with my wee team. (even if some of that was spent hiding in the utility room.)

(Remind me of this when I’m back fitting 38 hours into 24 and complaining about the things I’m currently missing!  Because we’ll al do it!)